Getting through somehow

My mother has vascular dementia, which renders her more and more aphasic, though in her case–so far–her “emotional tone” (as philosopher Arne Naess calls it) has remained intact. I visited my mother on a recent occasion when I wasn’t feeling my best and had had a week of less-than-good health. It was not a matter of duty. The time I spend with my mother is beautiful. But it had been a tough week. Let’s leave it at that.

We sat in her apartment in the assisted-living wing and arranged the flowers I’d brought. Then we spent 20 minutes in a kind of conversation, to which I’ve become accustomed, during which she tries to convey information about something she needs to have done. In this case, after much of the usual (really, rather humorous at times) confusion, I deciphered that she wanted some sweaters taken to the dry cleaner.

Such minutia. And yet, so difficult to get across, across that divide of language and cognition. The incredible concentration and effort it takes her just to dial a phone number to call her ailing sister. To tell the nurse aide that she needs more yogurt. Anything.

Then she surprised me. She pointed to my forehead and then to her own. “This,” she said. “Is wrong. For you. What?”

Was she reading a crease in my brow? I told her I had not been feeling great. She wanted to know, so I told her details, the way one tells one’s mother. Even though I am never sure quite how much gets through.

“Lie down. Take off the peaks.” By which she meant shoes. Why not comply? We both took off our shoes and spent the visit relaxing. We even indulged in a glass of wine because she loves to offer wine to her guests. Never mind it was 11 am. My mother has lost that rigid cognitive sense of time that the rest of us spend our lives obsessing over. There’s something valuable in that loss, though it is a loss.

She’s still teaching me things. Other ways to live with loss (my dad, her “normal” brain, mobility, words…).

~~

The next evening, she called me. She wanted to know how I was feeling. I’m 63 years old and my mother is 88, and she’s still worried about me.

I’m feeling loved.


Love is all you need

For example

Still mulling about how language changes and whether or not I agree with Emerson:

“Language is fossil poetry. As the limestone of the continent consists of infinite masses of the shells of animalcules, so language is made up of images, or tropes, which now, in their secondary use, have long ceased to remind us of their poetic origin.”

Ralph Waldo Emerson

Well, maybe not the tropes’ poetic origin but the words’ cultural origin. Their social origins, because language is inherent in human culture–we must communicate to survive. And if that means language includes words with violent origins or male hierarchical origins or race supremacist origins or nationalistic origins, the words cannot so easily be erased. We use them as they are, regardless of their nasty backgrounds, tropes and metaphors and all. An accretion of meanings alters the words as cultures evolve and change.

That doesn’t mean we should not critique or examine our words.

In a decade or two, terms change. Jargon, technology, politics, culture all exert forces on how we say what we mean. Here’s an example from my own experience as a creative writer. I wrote a poem in 1983 (published in a journal I cannot at the moment recall), a poem about yearning, in which the speaker observes a male-bodied person who dresses as a female. In 1983, the most respectful word to use for such a person was “transvestite.” Hence the title I chose for the poem: “Transvestite on the Long Island Ferry, July.”

Perhaps the person in the poem was not transvestite but transgender (though that was very rare in 1983)–or “gender-fluid.” In my poem, the observer/speaker uses the pronoun “she.” The observer can only speculate and does so on the speaker’s terms. Without the word transvestite in the title, the poem could be more generally understood–as, say, an older speaker watching a young female.

As the writer of this poem, I’m not going to revise its terminology; but I might change the title if I were ever publish it in a collection (this poem, nearly 40 years past its composition, has not appeared in any of my books). Given that, here it is–with a change in title and nothing else. What do readers think?

~~

On the Long Island Ferry, July
 
She leans against the deck rail,
  her red dress an amaryllis
    in a khaki sea.
 
I notice she is unfamiliar with the problem
  of holding a dress down over her backside
    while keeping the wide white sunhat in place—
 
and what to do with the matching bag?
  That kind of awkwardness
    marks her as an amateur.
 
I think, she wants womanliness
  like in the movies—
    La Dolce Vita, maybe—
 
she hasn’t learned, yet, about women.
  I could laugh at her impression,
    but I understand her longing.
 
She stays at the rail, struggling to enjoy flirtation,
  the barfly wind pestering her relentlessly,
    Hey honey, wanna go out?
 
Boozy breezes disarrange her hair,
  grab at her panties,
    try steering her to a quiet corner.
 
But she stays put. I sympathize with her need
  to drink in the restless waters of the Sound,
    feeling new in her body: bright, swirling, real.
 
I watch her from Bridgeport to Long Island
  with a kind of envy, unable to recall
    the last time I longed for anything so completely.
 
 

~~

Naming names

A friend sent me the link to this NY Times article and asked my response as a gardener and as a writer who teaches writing. She wondered whether the flower-name Mexican hat (a type of coneflower) is racist, and if a flower resembled a beret and were called French hat, would that be racist?

“This Moth’s Name Is a Slur. Scientists Won’t Use It Anymore.”
https://www.nytimes.com/2021/07/09/science/gypsy-moth-romani-entomological-society.html?referringSource=articleShare

She has given me much to think about. I suppose people ought to use the botanical name to identify such things, but most people aren’t going to refer to gypsy moths as Lymantria dispar. Though if you look at the botanical names, those too bear some consideration as Eurocentric or white supremacist, given their inherent background: so many plants are named for their (colonizing) European “discoverers” or have names that mean “ugly” or “stinky” or, in the case of Lymantria dispar, “ill-suited and unlike.”

The reason Mexican hat (or French hat, for that matter) might be considered racist is that they are inherently stereotypes. Mexico is a huge and diverse place, and not everyone there wears a sombrero any more than all French people wear berets. I suppose we could call them sombrero flowers. That would be naming them by what they resemble. And we could call Dutchman’s Breeches pantaloons flowers. That’s a whole lotta name-changing going on, and the likelihood that everyone will take to the new names? That, only time will tell.

As to gypsy moths, the name was dubbed in a derogatory way–as in, “We don’t want those traveling gypsies around (and that’s what these moths are like).” So, it is a slur. A verbal aggression against Romani people who were already tagged with a name someone else gave them (the etymology of the name is here: gypsy).

Hypothetically, we could continue to call the moths gypsy moths; but when we use the term, we can tell our children (for example) it used to be considered a bad thing to be a gypsy, but the Romani people aren’t bad and neither are the moths–the moths are just being moths and doing what moths do. It’s people who brought them to a place the moths could end up being so destructive that we now have to kill them or discourage them from breeding here. [BTW, it was the white European people who colonized the American continent who brought the moths here.]

Yes, that’s complicated. Most people don’t want to go to the bother of subtle explanations. So sometimes a name change is actually simpler. People complain about “politically-correct language” and changing English into something it shouldn’t be…it can be difficult to keep track of.

But because English is a living language, I expect and generally accept changes to the language as there are changes in our living culture. Am I always happy about “verbing a noun” or use of the words “impactful” and “relatable” or mixing up “lie” and “lay”? Um, no. Does the speed of change make my job more difficult? Why, YES! But if a person makes me aware of sensitivity in language, such as stereotyping, I respect that. It makes me reflect on language and culture.

The beauty of the world in which we reside. Here’s Ratiba columnifer (the flower formerly known as Mexican hat).

https://www.highcountrygardens.com

The right words

Due to mini-strokes and constriction of the blood flow in her brain, my mother has developed the same form of cognitive decline that my mother-in-law had: vascular dementia. In both cases, aphasia ravaged their speech as their conditions worsened. My partner’s stepmother also had aphasia due to stroke, so I have now witnessed the condition up close among three women who had very different backgrounds and personalities. As aphasia presents most noticeably as a loss of verbal expression (talk about being at a loss for words!), the condition fascinates me (a person who loves words).

And devastates me. My mother had never been “good at words” the way my father was, but she was a compassionate listener and often could find the right things to say when my glib and witty friends and family members could not. I recall many times when she would ask to talk to me alone and express something she’d been keeping to herself and reflecting upon, waiting until she could “say it the right way.” Now, she can say almost nothing “the right way.” Rain becomes snow; snow becomes green; hat becomes clark; tomato becomes red; table becomes place…and even these are unreliable substitutes, likely to change from one conversation to the next. The pronoun she has vanished from her lexicon. Her vocabulary is little better than a five-year-old’s, and she inadvertently invents words that are essentially meaningless while trying to convey meaning.

She can still read, a little, and slowly. A few months ago, I gave her a book by Eloise Klein Healy, Another Phase. Healy, a well-known poet, was stricken with Wernicke’s aphasia and–with a devoted speech therapist’s help–regained the ability to compose poetry again, though the work she now produces reflects her profoundly-changed expressive abilities. My mother was pleased that she could read the book and that Healy could make poems even with aphasia. And Mom understood the poems–had memorized a few image-lines that she liked. This stunned me–memory’s often wrecked by vascular dementia, or so we are led to believe. But my mother has a good memory. She merely has extremely limited verbal expressiveness–an inability to locate the right word, and a loss of numeracy and literacy. Alas, the result means she cannot make her ideas and thoughts known to others. Isolating.

The pandemic lockdowns at her assisted living campus, my father’s death after 62 years of marriage, her gradual hearing loss, her inability to drive or go shopping–all of these led to further isolation. And isolation, of course, worsens the dementia.

Now that the lockdowns have been lifted, my family members are spending as much time as we can visiting her. One Best Beloved drove her to the church she has been attending by Zoom, now that in-person services have resumed. This past holiday weekend, I picked her up at her apartment and drove her back to my house. Due to my dad’s ill health and the pandemic, it has been over two years since she was here; but for 25 years, she and my father drove here many, many times. It was heartwarming to watch her as she relished returning to a familiar and much-loved place, which also happen to be my house and yard.

She kept saying, “This is so good. This is so, so good!” We’d arranged a mini-gathering for lunch, and there was tasty food and lively conversation all around her. She doesn’t seem to feel frustrated at not being able to join in the dinner chat; I think she was glad just to listen. After awhile, her vocabulary even expanded a bit. She said, “This is fun!” and “This is so great!” in addition to repeating how the day was so good. The joy was palpable.

(I am reading about joy just now, as it happens–a book by Douglas Abrams, Archbishop Desmond Tutu, and the Dalai Lama called The Book of Joy. More on that another time, perhaps.)

After lunch, some dessert, and a brief nap, my beloved mom admitted it was probably time for her to return to her apartment. I drove her home, and the ride back was full of comfort and ease and quiet companionship such as I haven’t felt with my mother during the past couple of difficult years, though it’s been there my whole life. I was helping her out of the car when she said, “That was wonderful. Let’s do that again!” Two sentences in perfect grammar, and a boost in vocabulary from good to wonderful.

“Only connect.” I don’t think E.M. Forster was referring to aphasia or to isolation in Howard’s End, but the phrase suits today’s post. Human connection matters. Indeed, it’s wonderful.

Traditions

My dad liked to fly a kite on Good Friday.

I’m not certain how the tradition got started, but I remember as far back as first grade–maybe earlier–his taking us out to a park on Good Friday and sending a kite into the early spring winds. Maybe it was a sort of metaphor for hope, as was the Resurrection, according to his beliefs. Maybe just something to do with the kids when we had the day off from school.

Some years we had more success than others getting the kite aloft. There may be a metaphor in that, as well. What happens when what’s perching on the soul just huddles, dodging the weather and predators? Guano on the ground of the spirit? As a person who gardens, I could really overstretch the symbolism here: fertilization and renewal, so on.

But I haven’t been in the garden for a couple of days–we are having our blackberry frost and it has been chilly. Instead I am thinking about my absent dad and the significance of the holiday in my growing-up years. In church, the purple vestments were switched for white with gold trim on Easter; and my father, in his clerical robe and stole, looked important and shiny behind the pulpit. White flowers, especially lilies, showed up; everyone wore their best spring outfits. I feel nostalgia around these rituals, but they did not settle into my heart and create a believer of me. To my dad’s sorrow. I know my decision to leave the Church grieved him, but he accepted me and loved me all the same. He believed he’d see us in heaven, though he’d admit he had no idea what the afterlife would hold.

Rejoicing in the world’s beauty, the sharing of fellow humans’ suffering, and the way words can express the things that matter–the Biblical poetry–those things have settled into my heart. My consciousness. Hence metaphor and symbol and rhythm, songs of grief and praise.

They rise.

Like the hyacinths and daffodils rising from the half-rotted leaves of previous autumns. Like the flicker rising from the grass after scoring a grub. Like the early morning fog rising as high as the nearby hilltop, then merging into clouds. Like the sprouting kale seeds, the new pea leaves.

Like the thing with feathers. Or a kite.

~

I listened, this afternoon, to Bach’s St. Matthew’s Passion and remembered Good Fridays with my father. That’s all the poetry I have to share today.

The last time my dad flew a kite was 2016, I think. And it was October, oceanside.

Dad (using the walker, far right) keeps a kite in the air above the Atlantic.

Evolution

Evolution

The chickens mill and scratch;
what do they know of their theropod ancestry,
how many millennia it took
to evolve a brain, without neocortex,
capable of amodal completion
immediately upon hatching, a brain
that supplies all they need for survival
until the hatchet, predatory snag, parasite, virus?
Hens in the garden stride through scythed weeds,
make an unhurried ambit of the dead
and dying remainders—
Stumps of stalks, twisted beige grasses
the color of birds’ tail and breast feathers,
brown-speckled hens, rumps dun, red combs.
They cluster in a fence corner,
step on each other’s heads,
snap up bees and beetles during autumn’s
short-limbed days. The clawed foot
extends, grasps, clings to roost.
A Jurassic hinge, rusting, its vitality immured
in the muttered musing of hens.
Dry leaves, blooms gone to seed.
How the mighty have fallen.

~

This is an older poem, going back at least ten years. It seemed suitable for the end of autumn and the looming solstice today. I love that I could use the terms amodal and neocortex in a poem. That kind of poetic vocabulary isn’t everybody’s “jam,” but the thwarted scientist in me enjoys playing around with this sort of fact-meets-art interdisciplinary terminology. And yes, there’s an opportunity for metaphor here, in the virus and in the chances evolution randomly develops as to who’s on top or who thinks they are on top. A lesson for us all.

Relevance

The virus year has left me questioning the relevance of my poetry practice to the world of literature, such as it is. I have not been sending work to journals. I have not spent much time on revisions nor on going through my work in order to assemble another manuscript (or two).

My father suffered awhile, then died–what can I say? It has been hard to write, especially given the mental challenges of learning a host of new technological platforms and completely redoing my syllabus to adapt to the changed methods of college classroom instruction and tutoring. How does the saying go? “I ain’t as young as I usta be.”

Given that the year has been even more of a media frenzy and social norms chaos than the years preceding it, the word unprecedented has been overtaxed into meaningless syllables; and the word relevance has taken on a sort of socially-annointed value that leaves me certain I have nothing to contribute except more noise. Why bother to write poems? It may be that there are more useful ways I can spend my “senior years.” Reinvent myself as an advocate or mentor in some other field: gardening/environmentalism, education, literacy, hospice care…

Maybe I could just go back to hobbies. Photography, embroidery, sketching and painting, flower arranging, hiking. Or take up some new craft or endeavor. Maybe birding. And am I then somehow engaging in more or less relevant processes?

Garth Greenwell has an essay in a recent Harper‘s, “Making Meaning,” in which he poses questions about the concept of relevance as it relates to art and concludes that he disagrees with “relevance” as a critique criterion, one “that feels entirely foreign…to the real motivations of art.”

If I had a question like that on my mind as I tried to make art, I would never write another word.

Greenwell

These words, to me, are encouraging; while I may not buy into every point of Greenwell’s essay, the fact that someone other than myself (and a better writer than I) wrestles with aspects of relevance confirms my discomfiture as–well, valid? In his case, critics suggesting the less-than-relevance of his fiction are those who think stories about gay men and their sexualities and their stories are too “niche” to be relevant to readers of literature. A far cry from my own form of irrelevance, which is that my poetry is too tame and nature-oriented and dissociated from the suffering, disoriented, unequal, unjust world of human society to be truly relevant to readers. I am no performer, but a writer:

When I consider the subject matter of a work of art, I want to talk; when I consider its form, I want to contemplate.

~

…I do believe in the universal, that some commonness in human experience can be communicated across gulfs of difference, and I believe that art can give us access to it.

Greenwell

The essay is worth reading in its entirety, as some of its assertions deserve discussion. Especially noteworthy is Greenwell’s anecdote about reading and loving Augustine’s Confessions, a text I re-read and still love for many reasons, not one of which is due to religious beliefs. Greenwell says Confessions is still relevant today because of Augustine’s creative and relentless questioning and the ways he expresses his own confusion, “making bewilderment itself a tool for inquiry.” Yes! Among, of course, many other things.

Why do we make art? Maybe just for the challenges it presents, the inward puzzles we invent for ourselves and must solve for ourselves or leave unsolved. I’m looking out my window at snow coming down just now, a wet snow that sits heavily on the pine branches and lends a “clean” look to the surrounding fields and lawns. Relevant takes a prepositional phrase: the snow, the meadows, the hedgerows are relevant to my experience, if to no one else’s; if so, I suppose I compose/make art for myself…and if others find resonance there, the work is done by the reader, or on the reader’s part.

A good definition of art, it seems to me, might be the science of making meaning-making tools.

Greenwell

Root

We do not always have words.

Even if language assists in the emergence of consciousness-as-we-know-it, even if the naming of things as sign or metaphor is, as most human beings believe, “uniquely human,” there are the inexpressibles. The things semiotics does not quite register.

Perhaps this obstacle–the obstacle of words themselves–is what made reading David Hinton’s China Root: Taoism, Ch’an, and Original Zen so difficult for me.

~

Vincent Van Gogh, “Tree Roots” Van Gogh Museum: https://www.vangoghmuseum.nl/en/collection/s0195V1962

~

The core practice of Tao seems simple enough, except that our self-identity-based brains do not want to work in that way: not to think of self as “I” at all, but to live in the real world as emergent and ever-changing cosmos watching itself, absent while present, non-being while being, receptive to all change as part of how the cosmos operates, experiencing the hinge of Tao, everything and no-thing. No you or I.

Can I put the concept into words? No. Can David Hinton? Well, sort of (while repeatedly telling his readers that it isn’t possible to put Ch’an into words).

Hinton takes an approach that is partly etymological–based on early and later Han characters in their logograph forms–and partly cultural, namely the influence that Indian Buddhism exerted on existing Tao concepts as Buddhism moved into China during the later Han dynasty. Thus, he divides the text into chapters, each illustrating a significant Ch’an component, practice, or idea.

The logic makes sense, and I have gained a lot of background on culture and Chinese characters in the process; but I cannot call this book an easy read. The blurb says it is “thoroughly gripping” and cites the author’s elegance and clarity. The blurb writer is, however, a Roshi, and thus much more familiar with Zen and writings on Zen than I am. I love the metaphor of the root for many reasons, and that aspect of the book works for me.

~

Another part of the book that resonates with me is the chapter “Rivers-and-Mountains.” After reading Hinton’s explication of the calligraphy and painting meditation practice of long-ago Chinese artists and intellectuals, I have a fuller understanding of Zen as landscape, Zen as poetry, at least as [Hinton theorizes] it was practiced in ancient China. I have always felt drawn into such artworks, and now I have better insight as to why that is.

~

I will have to re-read China Root again and again if I am to understand it, though. Or perhaps just work with more ordinary diligence on landscape meditation made present through poetry.

Even though enlightened awareness–among other things–cannot really be expressed in words. 😉

How can it be

Another book about how to die, or how to think about dying: Roshi Joan Halifax’s Being with Dying–the subtitle includes compassion and fearlessness, two qualities Halifax explores using Buddhist approaches, such as meditations. While I like to read about meditations, meditation itself eludes me; I am “bad” at practicing, but authors like Halifax and Kabat-Zinn give me hope that even poor attempts at meditation can be useful in dealing with grief, stress, and anxiety. Death is the most normal thing in the world. How odd that we must teach ourselves how to “be with” it. How to keep from worrying ourselves to death about the most normal thing in the world. Worrying accomplishes so little.

When I was a college freshman, I interviewed my great-grandmother (born in 1884) for a cultural anthropology project. She talked about living on a small farm, nursing her 12-year-old son through the Spanish flu, baking and slaughtering and canning and drawing water–life before rural electrification. She said:

Times was hard, but times is always hard, and our lives were no harder than anybody else’s.

Orpha Ann Parrish Smith

Good to keep that in mind at present.

My temperament has always tended more melancholic than anxious; but in these days of covid, flu, and concerns about my bereaved and elderly mother, worried thoughts arrive, especially in the wee hours, especially as cases climb upward in my region and my mother’s assisted living center starts yet another lockdown. I try to imagine the changes the extreme elderly experience…I imagine her being ‘assisted’ by caring, gentle people she does not really know and with whom she can barely communicate due to anomia and aphasia, which makes her grief for my father truly inexpressible.

“I can’t say anymore what I say,” she tells me by phone. “On the wall, it says, what is it? Now?”

“The calendar? It’s Tuesday, Mom.”

“No, the other. The…weather. Season.”

“Oh. October. It’s October.”

“How is it? And I am trying…when was it? That he died?”

“August, Mom. August 25th.”

“Has it been since August? Was it August? Already? So many now. Many…pills. No, ice. Ices gone by. I don’t mean that. I said–“

“Many days, I know. Can it really be October already? And he’s been gone since the end of August. Summer.”

“25. 25 days, August, October. How can it be?” she asks; and I can tell, over the phone, that she is shaking her head slowly the way she does, wondering, surprised, how can it be…

There are times she says exactly the right thing.

How can it be? Something I might want to meditate upon.

Practicing

When I was 15 years old and learning to type on my dad’s old manual typewriter, I decided to write my memories; I was composing memoir before I knew what memoir was, under the influence of fiction (David Copperfield). I lost track long ago of where those pages are, but I do recall that I wrote page after page. What on earth would an adolescent who was raised in loving and non-traumatic circumstances in a middle-class New Jersey suburb have had to say that was worth recording?

I wrote about losing a toy bear, and learning to read; receiving second-hand books with joy, reading voraciously, wondering what it would be like to be an orphan, and feeling terrified of dying. I wrote about the attic of our old house and learning to ride a bicycle. There were other things, too, that I can’t remember now. Generally, mundane and typical 1960s-childhood events–and descriptions galore. It felt important to write down the small details.

Perhaps I should have gone into journalism.

These days I’ve no interest in writing memoir. I have kept a journal since I was ten years old, and that constitutes enough self-indulgent scribbling on its own. I treasure, however, the practice all that writing gave me: practice in constructing sentences, employing vocabulary words, creating metaphors, using punctuation in various ways, expressing abstract ideas and describing concrete objects. Writing, learning to write, critique, and revision have been immensely valuable to me.

I’m not sure who I would be if I hadn’t been constantly writing (and reading). Maybe I’d have been a contemplative.

~~

All of which is to report to my readers, who may be experiencing their own obstacles to their art, that –yes– the writing continues in the face of loss and grief, anxiety, and the work of the body in the world, in the mundane spaces of daily grind and in the wakeful hours, and in the containers of dreamwork and consciousness. Right now, the writing is not “good,” not crafted, aware of itself, ready to speak to others than the self. It is, at present, more akin to what the Buddhists call practice.

Photo by Donald Macauley on Flickr | https://tricy.cl/2DSmsmY

~

Keep working, keep practicing, keep breathing.